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Rare disease

Discover Pinterest’s 10 best ideas and inspiration for Rare disease. Get inspired and try out new things.
Rare Diseases South Africa

Rare Diseases South Africa bridges the gap to improved quality of life for those impacted by Rare Diseases and congenital disorders through advocacy and empowerment.

Rare Diseases List and Definitions

Information includes a list of rare diseases and the definition of the term orphan disease, which is sometimes used as a synonym for rare disease

25 Misconceptions About Living With a Rare Disease

“There's an assumption that all doctors know and learn about rare diseases. This is certainly not true.”

Race against time for woman, 23, with rare disease

A young woman who was diagnosed with a rare and incurable disease which paralysed her stomach has been sent home from hospital to die.

Chargie struggles about doctors, the ER, rare diseases and more

There are some things that only people with chronic illness and invisible illness understand. There situations are familiar for all of us. How do you know you are a Chargie? When these all resonate with you, you are a Chargie! People with a rare disease are called Zebra's. It comes from an old saying they used to teach doctors in medical school. "When you hear hoof beats, think horses, not zebras." It means to look for the more common causes , do go looking for the rare diagnosis. In our…

Watch popular Rare disease videos

in case you didnt know there are over 7000 rare diseases and today we are talking about sickle cell disease. Sickle Cell is an inherited blood disorder caused by a genetic mutation in the hemoglobin gene making them sickle-shaped. It primarily affects individuals of African descent, but can also occur in people of Hispanic, Mediterranean, Caribbean and Middle Eastern descent.Symptoms include severe pain crises, chronic anemia, and an increased risk of infections and stroke. There is currently n
"Raising awareness for rare diseases like Amplified Musculoskeletal Pain Syndrome (AMPS) is crucial. With over 7000 rare diseases and 300 million people affected worldwide, let's spread awareness and support those living with these conditions #AMPSawareness #rarediseaseawareness #rarediseasematter #rarediseaseawareness #chronicillnessawareness #invisiblediseaseawareness #rareawareness #AMPSawareness #raredisorder #rarediseaseadvocate #rarediseasecommunity #painawareness #awarenessribbon #chroni
September is Dystonia Awareness Month!
Today I’m bringing awareness to hidradenitis suppurative. small disclaimer HS was originally categorized as a rare disease however, recently it has been found that 1-2% of the population suffer from this condition it has just been wildly under-reported . do you or someone you love have HS? . Like and follow to learn more about the more than 7000 rare diseases affecting 300 million people world wide #hs #hidradenitissuppurative #rarediseasepatient #skindisorder #raredisease #chronicillness #rare

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